It’s a notorious phenomenon in Asian Australian and Asian American communities:
We don’t tend to register to donate blood, organs, or stem cells as much as other communities.
Particularly in the case of stem cells (bone marrow), this is a life or death situation.
The likelihood of a non-Asian donor matching with an Asian patient is much lower than that of an Asian donor and an Asian patient.
This is an instance where the grey areas of identity and belonging do not hold: for bone marrow donations, Asians need Asians.
You can find out why HERE (American site, but still relevant to Asian Australians and others).
Why am I writing about this at the moment?
Because I’ve heard from a good buddy of mine, Emily Sun, who was a member of the AASRN and writer/Masters student. One of her short stories featured in the anthology Alice Pung edited, Growing Up Asian in Australia.
She has also been a super-keen commenter on this blog and I have always loved how we ‘met’, and got to know each other, mainly through social media.
Emily is facing her third round of treatment for PMBCL (a rare form of lymphoma), and her best chance at longer-term survival is a stem cell (bone marrow) transplant from a matching donor.
Her gorgeous little boy, Luke (who I was lucky enough to meet when Emily and her family were last in Melbourne), has watched his mother go through intensive rounds of chemo and radiation treatment since he was less than three years old. He has made a book for his mum – Family Dinosaur (animated – on YouTube).
Emily has written about parenting with cancer here.
Emily’s story and the campaign surrounding her make me want to reach out and shake the Asian – particularly Chinese – community about a bit.
As mentioned above, Asians are less likely to register to donate bone marrow or blood.
This cultural resistance to donation means that Emily’s chances of finding a match are challenging.
I couldn’t help myself.
I DID SOME RESEARCH.
Common anecdotal evidence and various academic articles about the psychology of donating (or not) iterate the ‘cultural factors’ – some say it’s religious.
A 2002 study that interviewed (American) high-school students found that Asian Americans in particular:
“expressed conflicts between the concept of organ donation and their religious upbringing. They also expressed concerns about the body remaining whole after death, similar to the views expressed by Asian-Americans adults.” (Spigner et al 2002: 99).
This is consistent with a handful of other studies that note the same tendencies, yet the same study notes that adolescent Indians in India and young Chinese people in Hong Kong were found to be “highly accepting” of organ donation. What accounts for the anti-donation sentiments?
On another note, a 2007 study about the donation patterns in Australian cord-blood banks showed that the percentage of cord-blood banked from Asian donors is on par with the Asian community’s general population percentage: 6% (Samuel et al 2007).
What I would like to see is research on how to develop a higher rate of registration and organ/blood donation from Asian communities – what would encourage more to get involved? Is it a question of education and familiarity with the country’s medical contexts?
Is it really about religion? What decent religion would really say ‘Don’t save any of your fellow human beings! Save yourself!’?
Meanwhile, even though we may not be able to transform our communities’ attitudes instantaneously, we can make the decision to act:
- Get the word out about bone marrow / stem cell donation – visit the Australian Bone Marrow Donor Registry (ABMDR).
- Register yourself as a donor – yes, humanities people can save lives, dammit!
- Support my buddy Emily in her challenge to find a stem cell donor match. Cancer screws up more than your health and emotions; it drains finances and disrupts work. You can Like Em’s Fb page here, and pimp Em’s website.
- Spigner, Clarence, et al (2002). “Organ Donation and Transplantation: Ethnic differences in knowledge and opinions among urban high school students.” Ethnicity and Health 7:2, 87-101.
- Samuel, G. N., et al. (2007) “Ethnicity, equity and public benefit: a critical evaluation of public umbilical cord blood banking in Australia.” Bone Marrow Transplantation (2007) 40, 729–734; doi:10.1038/sj.bmt.1705812; published online 13 August 2007.